[81118671]
I was recommended by faculty at (b)(6) to undergo "photodynamic therapy" for treatment of actinic keratosis on both hands and arm. I had the procedure at uic on (b)(6) both arms were treated with kerastick (levulan), left hand/arm exposed to blue light, right hand/arm exposed to red light. By evening, i experienced extreme itching, and by morning of (b)(6), i had extreme redness on both arms and hands. By afternoon of (b)(6), i developed severe blistering, swelling, pain and burning in both limbs. Uic prescribed triamcinolone and hydroxyzine, and i had to consult outside physicians for opinions. I spoke with dr. (b)(6) of (b)(6), who manufacture the drug kerastick, and he advised me that kerastick is only fda approved for use on scalp and face; the fda application for use of kerastick on limbs and extremities has only recently been made, so the uic physicians seem to have been conducting an unauthorized clinical experiment without my knowledge or permission. Dr. (b)(6) said that my reaction was unusual in its severity. Addendum by (b)(6) on (b)(6) 2017 2:37 pm (verified). Spoke with pt's husband, today and he stated that the pt was close by the phone, improving and blistering has been resolved. Blisters have dried out and the skin is becoming ready to peel. Husband has asked if any permanent skin pigment changes would follow this response. I have explained that we do not get any permanent pigment changes due to pdt and have strongly advice daily spf over 30, moisturization, avoidance of picking dry skin. Aggressive moisturization due to extensive reaction. Many cont tac and hydroxyzine as needed per itching symptoms. Husband and pt state that are very knowledgeable as far as wound care. Have offered to see the pt to clinic a f/u anytime but husband and pt state that are unable to come due to long distance which is understood. Strongly encouraged to rtc/call back with any add'l questions or concerns. Extensive education regarding the above entity. Husband - and pt expressed full understanding. All pt's questions were answered today.
Patient Sequence No: 1, Text Type: D, B5